Archives For Hope

They Just Adapt

November 26, 2012 — 9 Comments

I’ve been feeling very inspirational-y lately.

Lots of thinking about dreams and stars and how to reach them and such.  So, when I found this picture the other day, it really resonated with me:

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“Dad of the Year” goes to…my dad!

Look at me there, reading the sports pages on the toilet just like every other all-American boy.  “I don’t care how many hands he has! He WILL read on the john even if I have to help him at first!” said my dad.  I’m starting to choke-up a little bit…

Finding that picture was perfect timing, too.  Nikki, a woman I used to work with, had just sent me a message telling me about meeting a little girl who had a limb-difference and she closed it with this:

“Anyhow, just saying that meeting a little one who has only one hand and watching her maneuver around and get into trouble made me realize what you always tried to tell me: It’s all she has ever known and she has adapted to it and it’s her normal. It was a cool realization.”

Continue Reading…

Different Is Awesome!

November 10, 2012 — 7 Comments

The other day Shannon sent me a message that got me thinking.

Dangerous, I know.

Shannon is the same age as I am and was born with a similar limb-difference.  She said, “I have never felt sorry for myself because of it, but I hate the stares and the self-consciousness.  I find myself ‘hiding’ my hand in my shirt most of the time and I hate that I do that, but I dont know how to change it!  I have never met anyone else like me so it’s cool to see you just embracing it and not feeling self-conscious.  How do you do it?  I was never like this when I was younger but I feel so different from everyone else now.”

She didn’t bold that question, but that’s what it looked like when I read it.  It took me a while to respond.  And honestly, my answer to her was pretty lame.  I floundered.  I was basically like, “Uh…a lot of it is probably just my personality.  And maybe my parents?  Or, like, maybe it’s all an act and I’m really just a horribly self-conscious person who pretends he’s someone else all the time?”  Could be, I suppose.

The truth is, I do know I’m different and most of the time I’m cool with it.  There are times when it bugs me, sure, but usually it’s no big deal.  I certainly can’t remember hiding my arm.  If pressed, I’d say that one of the main reasons my limb-difference doesn’t bother me is because the rest of me is so normal.  I have self-discipline issues when it comes to eating healthy and exercising, just like anybody else.  (That was a fancy way to say, “I sit on the couch and eat crap way more often than I should.”)  I have bad hair days.  I forget to take out the trash.  I love watching football and rooting for my Badgers and Packers.  I love to laugh at my kids when they say funny stuff.  I love when my wife and I are punch-drunk in the middle of the night and can’t stop laughing at stupid things we say.  I love taking baths.  Yes, baths.

The point is, while my arm is different, on the whole, I’m mostly not.  What’s funny to me is that we all seem to have this love/hate relationship with being different.  Shannon hit on this when she talked about how she never felt different as a kid, but does now.  When we’re kids we’re told that we’re like snowflakes.  Every single one unique.  I don’t know if that’s even actually true or how you’d prove it, but it sure sounds good, right?  And when we’re really little, we love that idea!  I’m the only me in the whole entire universe!  And then, at some point, that stops being awesome.  We all start getting self-conscious and mean and this tension arises wherein we want to be unique, but we also want to be accepted and we believe that the way to do that is by being like everyone else.

Well, let’s stop that.

I totally get that being teased or rejected because you’re “not the same” can be devastating.  I’ve been there, as have many of you, I’m sure.  Still, my encouragement is for you to accept and embrace whatever makes you different.  Whether that’s a limb-difference, or glasses, or your height, or your hair color, or anything else.  There’s no reason to be ashamed.  No reason to be embarrassed.  You are different…and that’s awesome.

Be you.  Be awesome.

To that end, I’d like to reveal the new design I commissioned my friend Wes to create.  It says what I believe and what I hope you come to believe, too.  Let’s spread this idea.  Let’s empower people to embrace what makes them different!  Let’s get people to smile.

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This week I’ll be giving away SIX sets of LOH/”Different Is Awesome!” stickers!  Just use the Rafflecopter widget below to rack-up as many points as possible and then the six winners will be announced next Monday.  I’ve also added the design to the LOH Cafepress shop, so check that out, too!

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My kids, who are completely normal, love the shirts.

a Rafflecopter giveaway

 

You wouldn’t worry so much about what others think of you if you realized how seldom they do.
– Eleanor Roosevelt

Sunday Quote – Eleanor Roosevelt

“There are millions of people out there ignoring disabilities and accomplishing incredible feats. I learned you can learn to do things differently, but do them just as well. I’ve learned that it’s not the disability that defines you, it’s how you deal with the challenges the disability presents you with. And I’ve learned that we have an obligation to the abilities we DO have, not the disability.” – Jim Abbott

Sunday Quote – Jim Abbott

Everybody loves an underdog.

Right?

Well, not always.

A young lady emailed me recently and shared a story that broke my heart.  She was born like me, missing her left forearm and hand.  Even so, she never let it stop her from doing anything.  Until recently, that is, when she started college.  She chose to enroll in the respiratory therapy program because, as she said, “I want to save a life.”  Could a person have a more honorable reason for doing anything?  I think not.  Well, her instructor told her she either needs to get a prosthesis or quit the program.

Apparently this instructor is not a fan of underdog stories.

Continue Reading…

I Miss My Uncle Ed

September 10, 2012 — 4 Comments

April 10th, 1985.

I was in first grade.  Almost eight years old.  I remember being taken to an adjacent classroom and throwing a chair after Mr. Szudy told me my uncle was dead.

Uncle Ed was my favorite.  My memories of him are few because I was so young, but I remember he was my favorite.  No offense to all my other uncles, of course.  Uncle Ed had a great smile.  He was fun.  He worked at a car dealership and I have a fuzzy memory of going to visit him there and riding around in miniature versions of the bigger, real cars.

Then, on April 10th, 1985, Uncle Ed kissed his kids goodbye in the morning, got to work early and took his own life.  He didn’t leave a note.  It was a shock to everyone.  Last year I talked to my dad about what happened that day.  The wound, some 26 years later, was as fresh as the day it happened.  The emotion just as sharp.  The love, the longing, the confusion, the anger, the sadness.

We’ll never know exactly why he did it.  And that’s really hard.  But we still love him.  And we always will.

Today is World Suicide Prevention Day.  On average, 3,000 people take their own lives every day.  Every day.  And for every person that is successful, twenty more try and fail.  Thank God for failures.

I’m afraid to say this, but it’s important…I’ve struggled with thoughts of ending my own life before.  I try to handle things on my own; I hide things and it becomes too much.  A person can only last so long that way.  I’m getting better, though.  My wife calls it “living in the light.”  It’s hard sometimes, but it’s the only way to truly live.

When I spoke to my dad that day last year, I hoped against hope that I remembered it wrong and that my uncle did leave a note.  It scared me that he didn’t.  Because it reminded me of me.  I can imagine he was going through some hard stuff, trying to fix it on his own, not letting anybody know about it and then it just all became too much.  I know how easy it is to get to that place.

I’m grateful for those around me, my family and friends, who won’t allow me to get there.  Ever.  And I don’t want you (especially family that might be reading this) to think I’m there now.  Far from it.  But, I feel like sharing my personal experience is the honest thing to do.  To let you know that there is hope.

If you are thinking about taking your own life…stop.  Please.  Get help.  Whatever it is that’s making you feel hopeless is a lie.  There is always hope.  Always.  If you feel like a failure, like the world or your family is better off without you, that’s a lie.  We need you.  We need your smile and your voice and your talent.  You are necessary.  If you feel like you just can’t do it anymore, I get it.  But please, hang on.  We’ll pull you.  Drag you.  Push you.  Whatever it takes.

And to everyone else, please look around you.  Do you sense someone is struggling?  Call them.  Invite them to coffee or to a movie.  Let them know they’re not alone.  You’ve heard the story, “I was about to…and then so-and-so called out of the blue…”  Be that person.  Be The Interrupter.

Will you take a step today?  Please do.  Make a call.  Reach out.  It’ll be ok.

We’re all in this together.

Ryan

 

 

 

 

 

 

National Suicide Prevention Lifeline – 1-800-273-8255

To Write Love On Her Arms

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What Are The Paralympics?

August 30, 2012 — 7 Comments

I hardly know anything about the Paralympics.

Like, is the word even supposed to be capitalized?

Seriously, all I know at this point comes from commercials.  I am aware of the following events: biking, swimming, sitting volley-ball…I assume there is running, wheel-chair racing and possibly basketball.  Maybe gymnastics?  If it sounds like I’m the most ignorant and uninformed “disabled” person when it comes to the Paralympics, that’s because it’s probably true.

The other day my friend Jen (from BornJustRight) posted a link to an article and asked, “Who is your favorite Paralympic [athlete] who deserves Oscar Pistorius – Paralympic Athlete-level media attention?”  “People have favorite paralympic athletes?” I thought.  And then I felt absolutely horrible for thinking that.

Maybe I could cheer for Crates. “GO CRATES!” Yep.

I don’t remember ever hearing about the Paralympics when I was younger.  I’ve always loved sports, but my heroes have all been of the normal variety.  The professionals.  It was always the NFL, MLB and NBA for me.  Those were the stars.  And it wasn’t as if I dis-liked differently-abled athletes; I literally didn’t know they existed!

Now here I am, turning thirty-five next month, and I’m just learning about the Paralympics.  It’s daunting!  I’ve started following some of them on Twitter.  I’ve gone to the website and read some blogs.  And while it’s still exciting to learn about, I still feel bad a lot of the time.  For instance, I have no idea how one would get on a path to become a paralympian.  Not a clue.  I don’t know the rules that govern qualifying or how difficult it is to make it.  And I feel like I should.  I feel like people expect me to know that for some reason.  I know that’s dumb, but that’s where my mind is at right now.

The fact of the matter is that I know hardly anything about a lot of things.  For instance, one of my friends makes lasers.  Literally.  I don’t know anything about that and I don’t feel bad about it.  I don’t have a connection to it.  Except that lasers are awesome, but that’s besides the point.  The point is, I feel like this is different because I have such an obvious (physical) connection to the Paralympics.  Because of that, I assume everyone thinks I should know about them.  But, do you know how many people have asked me directly about them?  None.

So, instead of feeling bad that I don’t know very much about the Paralympics, I’m going to enjoy learning about them.  I’m going to discover athletes to cheer for.  I’m going to be amazed by their stories.  I’m going to read the stories posted by my friends who know more than I do.  I’m going to allow my perception of “athletes” to be challenged.  I’m going to grow.  I’m going to watch people with bodies and abilities that are different than mine accomplish amazing things.  I’m going to be inspired.

And I’m going to go “Like” the Paralympics Facebook page.

Finally.

 

Here are some helpful links about the Paralympics:

Official Website

Official London 2012 Paralympics Page

And here is an amazing commercial for the UK’s Channel 4 coverage:

Channel 4 Paralympics – Meet the Superhumans from IWRF on Vimeo.

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A friend of mine took her daughter to the park recently.

While they were there, a man asked if he could pray for my friend’s daughter.  She said yes and he proceeded to pray for Kaelyn to be healed.  For her to experience “normalcy.”

And for her fingers to grow.

Kaelyn, besides being as cute as a button, has a little left hand with tiny fingers.

Me and the adorable Kaelyn

Kaelyn’s mom shared this experience on Facebook and the reactions caught me off-guard.  This guy was called a creep and an idiot, even a lowlife scumbag.  It was clear many thought his actions were beyond inappropriate; they were offensive and insulting.

The responses surprised me because I know where this guy is coming from.  I’ve grown-up in an environment where the ability of God to heal people physically is not only believed, but expected.  In fact, when I was younger, I was taken to a “healing convention,” since I was born with one hand.  We all lined-up on the floor of the coliseum and were prayed for.  I was even “slain in the Spirit.”  And by “slain in the Spirit,”  I mean that they pushed on my forehead and I dutifully fell back and then took a short nap.  My arm, shockingly, remained in the same condition.

My belief is that this man at the park was just trying to help.  He was misguided and uninformed regarding what he perceived as her needs, but I truly believe he had her best interests in mind.  Like me, Kaelyn doesn’t need physical healing for her hand.  She’s not ill or in pain, nor does she have a disease; she is the way God made her.  God didn’t forget to have her fingers grow.

Then there is the issue of normalcy, which seemed to be the most offensive part of the experience to those who commented.  “What’s normal anyway?” one person said.  Well, the definition of normal is “to conform to the most common.”  The fact of the matter is, having two hands is more normal than having one or none.  I’m sure that’s where he was coming from when he was praying for her.  Perhaps a better question than “What is normal?” then is, “Who cares about normal?”  Yeah, it’s true, I’m not normal.  I have one hand.  I’m different.  And for me at least, being different is awesome.  I believe that the more I try to be normal, the more I miss out on being unique.

The truth of the matter here is that we all have a lot to learn.

For the Christians in the house: Oftentimes, what seems right and helpful, might actually be perceived as insulting and even creepy.  This man’s words and actions, while well-intentioned, were perceived to be offensive and insulting because he assumed she wanted to be “normal” like him.  He assumed there was something “wrong” with her.  I’d suggest, before offering to pray for someone about what you perceive to be their needs, ask them what their needs are.  Tell them what you’d like to pray about before doing so and don’t be offended if they say, “No, thank you.”  Be open to hearing their perspective and learn from the situation.

And to all the non-Christians:  Be patient with us.  We Christians try really hard, but sometimes our good intentions undermine common courtesy and understanding.  Please believe that we’re trying to help, but also take it as an opportunity to teach us; especially those of us who have misunderstandings about the physically different.  And please don’t think we’re all creepy, idiotic, low-life scumbags.

The way I see it, my friend’s experience illustrated perfectly the paradigm shift that needs to continue in the world, but especially within the Christian community.  Nancy Eiesland’s work, The Disabled God, opened my own eyes to new perspectives regarding physical differences and disabilities in relation to my theological beliefs.  Certainly Jesus healed many with physical ailments, but obviously not all.  There’s no doubt in my mind that God can physically heal people, but I believe our definition of “heal” needs clarification.  For instance, perhaps you remember the paralyzed man whose friends lowered him through a roof into a crowded house because they believed Jesus could heal him.  Jesus first forgave his sins and then, to make a point to the Pharisees about the difficulty of doing so, healed the man physically.  The man’s physical healing was secondary to his spiritual healing.

I’d venture to guess that the majority of us who were born physically different would say we don’t need physical healing.  As I’ve said already, we are not ill or diseased or in pain.  We are the way God made us.  He didn’t screw-up.  We, too, have been fearfully and wonderfully made.

Let me be clear here:  I don’t envy the position “normal” people are in when it comes to knowing how to interact with those of us who are physically different.  I know most of you try hard and do your best, but the truth is, we’re all still learning.  And that’s great.  We have a long way to go, but we’re getting there.  I’m hopeful that the more we identify these issues and work through them, the better off we’ll be.

And just for the record, if you want to pray for me, I have a list.

My arm growing is not on it.

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I spent last weekend in Ohio.

I know, right?

I was invited to be a “guest of honor” at the 2nd annual Helping Hands Midwest picnic, so all five Haacks hopped in the van and made the nearly nine hour trip to Harrison, OH, for the fun.  And we were not disappointed!

Helping Hands Midwest is “a networking group for families who have someone with a hand difference; to get together to share, inspire and celebrate.”  In 2004 my friend Kim’s son, Gabe, was born missing his left hand and they made several trips to the east coast to meet with doctors and a group there.  She thought it’d be nice to have a group like that in the midwest, so…she started one.  She’s awesome.

We pulled into Harrison Friday evening and immediately participated in my kids’ two favorite activities:  Swimming and eating.  Since we were so much farther south than usual, we had to eat at Waffle House.  “This is the best food EVER!” the kids proclaimed.  Vacations are awesome because everything is the best.

Once we hit the pool, the real fun began.  Leading up to the picnic, I wondered how my kids would react to other kids with limb-differences.  I mean, I’m dad.  They’re used to me.  But, what about a bunch of kids running around with little arms?  Well, Joe and his daughter Julia were in the pool.  Julia is beautiful little girl with a hand difference and she was practicing holding her breath.  And then little Gavin showed-up with his family.  Gavin’s hands are different, but you’d never know it with all the swimming and jumping he did!  So, how did my kids react?  As of this writing, I’m not sure they even noticed.

Later that night I had the privilege of meeting Molly Stapelman (founder of LuckyFinProject.org) and her family in person.  Finally.  I had gone to get something from our car at midnight and on the way back into the hotel I see a woman (it was Molly) pop out of her car and say, “Hiiiii, Ryan.”  Classic meeting.  Team Stapelman was a tired bunch, so we said our see-you-in-the-mornings and went to bed.

Saturday morning brought breakfast and more swimming and more limb-different kids running all over the hotel.  I really wonder what the employees thought!  We headed over to the picnic around noon…and it was amazing.  There were nearly 200 people there!  We got checked-in and then made our way around to meet some people and my kids went to play games with the other kids.  Everyone seemed so happy to be there.  And it seemed so natural to me.  I wondered how I would react as I’ve never been around a group of limb-different people before (since I was little, at least).  It just seemed right.

My favorite part was meeting the kids.  There were actually kids there that were waiting to meet me.  Me.  What the heck?  I was so excited and honored to meet them!  And meeting the parents and hearing their stories meant the world to me.  It was so encouraging to hear, in person, that what I’m doing is making a difference.  To look into their eyes and shake their hands and give them hugs…seriously, it was the best.

Abdiel and Me

I got to give a talk, too, wherein I shared my story and gave some advice for raising limb-different kids.  It’s funny because I’m a dad, but all my kids have all their limbs.  But, I was the limb-different kid who was raised well, so I think that gives me a pretty unique perspective.  It went well from what I can tell, but next year I’m going to request a wireless mic or a stand.  It’s hard to hold a mic and speak when you’re a hand-waver with only one hand!  We also got to hear from my friends Eric (MySpecialHand.com), Tony Memmel, Elizabeth Stinson and Molly (LuckyFinProject.org).  Each of them had a unique perspective and powerful words to say.  I’m so proud to be friends with them all.

Saturday night a group of us took over the hotel lobby (shhhh!!!) and had so much fun I think I pulled a muscle from laughing so hard.  I remember looking around and thinking, “These people are amazing.”  Each one of them was funny and kind and compassionate and loving.  There was a comraderie between us all that went witout saying.  And I believe that connection will stay with us for a lifetime.

I’m so grateful for our time in Ohio with everyone involved with Helping Hands Midwest.  It confirmed for me, again, my role in the limb-different community and stoked the fire to push-on toward even bigger and better things.  It confirmed my belief that limb-different kids are some of the most resilient, creative, funny, determined kids on the planet.  It confirmed the fact that the parents of these kids are both down-to-earth and other-worldly.

And it confirmed that carrying two pizzas, a burrito and a two-liter of Sprite into a hotel – with one hand – is a pain in the butt.

Thank you SO much to Kim and everyone that attended the 2012 Helping Hands Midwest Picnic!

See you next year!

Best picture ever. Sam (MySpecialHand), Me, Molly and Ryan (LuckyFinProject), Tony and Lesleigh Memmel

Me and Sam from MySpecialHand.com

Ryan and Ryan, my little buddy (LuckyFinProject)

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A few weeks ago I wrote, “I don’t think I’m very stubborn.”

Yeah…I take that back.

This week I noticed a slow leak in the toilet in my kids’ bathroom.  Upon first glance, it just looked like one of the gaskets had given out.  The whole system was old, so I decided I’d just replace it all this weekend.  Fun Saturday project, right?  Heck, maybe I’ll even make a time-lapse video of the repair for the blog!

I got the parts and tools and set the camera up and away I went.  Everything went smoothly for approximately three minutes.  Then, as I started trying to loosen one of the nuts from the bolt that held the tank to the bowl, I noticed the whole thing kept spinning.  This is a nightmare for a person with one hand.  Two-handers can use one hand to hold the top of the bolt steady with a screwdriver and then work on the nut with their other hand.  I can’t.  So, I just kept spinning it and spinning it, getting more and more frustrated.

At this point, if I was smart, I would have stopped.  Of course I didn’t.  I mean, the video was running and I knew my wife wanted it done and I hate being defeated.  Seriously, ask my wife how I get with these projects. Wait…I take that back.  Don’t ask her.  It got to the point where I had stripped both bolts that I needed to remove, so…ugh, this is so embarrassing…I just grabbed my vice-grips and started torquing them back and forth, hoping to snap them in half.  One of them actually did, but the other one didn’t.  It really didn’t.  In fact, it so didn’t, it busted a hole through the tank.  You can imagine my joyous response.

Well, I was not giving-up.  I went back to the hardware store (we are now two hours into the project) and got a hacksaw (to remove the bolt) and a large rubber washer which would hopefully cover the hole.  I went ahead and put all the new hardware in and hoped for the best.  I turned the water back on and as the tank filled…it also started to leak.  Everywhere.  So, there I stood, sopping wet with sweat, my back and hand killing me, garbage and water everywhere, frustrated beyond belief.  Three hours for nothing.  And I still had to clean all this crap up.  And buy a new tank and do it all over again!

At least a had a cool shirt on.

Stubborn.

Being stubborn can be a blessing and a curse, I suppose.  In this case it seems like a curse.  I wasted a good portion of my day, when I could have stopped as soon as I realized it wasn’t going to work and tried again when I had some help.  That’s not really my gig, though.  I think of it as being “singular focused” or determined or competitive.  “THIS TOILET WILL NOT DEFEAT ME!” I said (before cursing it).

I need to be smart about it, though.  I’m sure a lot of you can relate.  I’m sure it’s naturally ingrained in me to prove that I can do things because of my limb-difference, but there are times I need to be less stubborn and more wise.  There are times I need to ask for help, even if it feels like defeat.

And as I write that, perhaps that’s where the lesson lies.  Maybe I didn’t waste three hours of my day breaking my toilet and my back.  Maybe it was to teach me that it’s ok to ask for help when I need it.  In fact, it’s more than ok; it’s necessary sometimes.  And when we put aside our stubbornness and get the help we need, things tend to work a lot better.

And even though my toilet is still broken, that lesson’s worth three hours.

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By the way…here’s the video: