Archives For Help

I often see parents posting about that dreaded moment. That moment when her child notices that there’s something different about her…and she hates it.

How are we to react in that moment?

Giving parenting advice is tricky. There’s no one “right way” to parent and I get that, so these are just my thoughts; take them with a grain of salt. For one, you’ll never hear me tell anybody how they should or shouldn’t think or feel.  Especially parents.  If your child’s newfound discovery and reaction makes you feel sad or guilty or angry and confused, I get it.  Those are reasonable feelings to have.  I’d like to be an encouragement to you, though.

I can only speak for myself, but I know many other limb-different adults who would agree…if I ever got angry or sad about my arm at an early age, I have no recollection of it.  None.

When our children are small, we help to shape how they think.  I remember when my kids were little, if they fell, I’d cheer.  They’d peer up at me with a look of surprise on their face, like, “Wait…I think I’m hurt.  Shouldn’t you be freaking out?”  And there I’d be, clapping and yelling, “Yay!  That was awesome!”  Then they’d pop up and carry on.  I’m sure you’ve experienced what happens when you gasp and cover your mouth and shout, “OH NO!”  The kid sees YOU freaking out, so THEY freak out.  I’m not a therapist, but I think it’s the same with this situation.  Your little one gets angry and sad about his hand and if you indicate to them that, yes, it IS a raw deal, they’ll carry that with them.  On the other hand, so to speak, if you allow them to feel what they’re feeling, but encourage them to view it as something positive, I believe that can shape their perspective, too.

Continue Reading…

It’s going to be cold here the next couple of days.

Like, close-all-the-schools-in-the-entire-state-of-Wisconsin cold.

So, since it’s still above freezing today, I decided to throw on a hat, lace up my sneaks and head outside for a brisk walk.  I bought the Run, Zombies! 5k app recently and thought I’d give it a whirl.  It’s funny because I don’t like zombies, but I do like stories and I heard this app was fun, so…why not?

I stepped outside, pressed “Start Mission” and began to walk.  It began with a two minute clip of a woman in a plane taking supplies to a remote village when suddenly the plane was shot down.  The radio operator from the village kept trying to make contact and eventually advised anybody who was still alive to get to safety.  Then…

Nothing.

Just silence.

Apparently the app couldn’t connect to my music.  The timer was still going, but it wasn’t telling me anything about how far I had gone or how much time was left.  I was really frustrated, but just kept walking.  Would another clip start to play at some point?  Did I do something wrong?  Every now and then, between dodging patches of ice, I’d pull my glove off with my teeth and fiddle with my phone, trying to figure it out.  Nothing seemed to work.  Eventually I just gave-up and walked home.

When I got home, I realized something.  Even though the app didn’t work the way I thought it would…it still got me out of the house and I ended-up walking for 30 minutes.  So, it kind of did work.  After the fact I figured out how to setup the Quick Playlist for the music and got deeper into the settings, so I’m confident it will work better next time.  And sure, I could have taken advantage of that time and “cleared my mind” or prayed or whatever, but I’m not going to beat myself up over that.  My goal was to walk and that’s what I did.  Mission accomplished.

We all want things to work as planned.  That’s natural.  It’s also inevitable that things will not go as planned sometimes.  What I learned today is that just because something goes differently than planned, it doesn’t mean all is lost.  It can still work.

In fact, sometimes those are the best, most interesting times to learn something.

Has that ever happened to you?

Usually I take advantage of an awkward situation and try to make it funny.

Especially when it involves my arm.

Not tonight, though.

I went to pick-up a pizza for dinner and as I waited, one of the employees started messing around.  “Dudes, I just cut off my finger!” he yelled and laughed.  “We’re gonna have to cut off the rest of your arm to prevent infection,” another kid said.  “Totally!” another one agreed.  “Here’s your pizza, sir,” the last guy said as he handed me the pie.  I just stood there, annoyed.  Did none of them notice my arm?  Or did they and they just didn’t connect the dots about what they were saying?

All I know is that usually I would have thought it was funny.  I would have said something like, “That’s what I had to do!”  But, not tonight.  Tonight I was grumpy.  I’ve been sick for nearly three weeks, I can barely speak because of said sickness (coughing), I have a headache, I’m tired, it’s literally going to be 50 degrees below zero the next couple days, I doubt the Packers are going to win on Sunday…you get the point.

So, why am I telling you this?  See, I have a deep sense of responsibility when it comes to my role in the world.  Part of that is being funny.  Part of it is being a teacher.  I put a lot of pressure on myself to take advantage of these types of situations and when I don’t, well…I feel like I failed.

We all have these moments, though, right?  We’re not proud of them or happy they occur, but they do anyway.  I know parents of limb-different kids look to me as an example and I strive to be a good one, so I figure some honesty here will go a long way.  Your kids will get frustrated at times.  Frustrated with a task.  Frustrated with people staring or pointing.  They might even snap and react in a way that “isn’t like them.”  And nobody really grows out of that.

While I didn’t snap tonight, I certainly reacted in a way that was out of the norm for me.

And that’s ok.

You know why?  Because it’s part of life.  We all have bad days.  We all react in ways we wish we hadn’t from time to time.  And you know what happens after we do that?  We feel kind of bad, maybe a little out of sorts, and then we move on.  We apologize to those we offended (if we did) and try to get our groove back.  Usually it just takes time.  Other times a good friend helps us through.  Somehow or another we get past it and start acting “like ourselves” again.

When I left the pizza place, I thought to myself, “Well, that was a waste.  That could’ve been super funny on Facebook.”  And while that’s true, I also realized I wasn’t giving myself grace to just be a dude.  A dude who was feeling grumpy.  I need to remember to do that.  We all do.

Especially now that we’re all only days away from breaking our New Year’s resolutions!

There we go…a zinger.

I think I’m turning the corner.

Be gracious and patient with yourself.

I will, too.

UPDATE: I’m just using this every year and adding stuff as I see it. If you have any ideas, let me know!

It’s that time once again to spend money on the people we love!

Or we got someone’s name in an exchange and have to get them something.

Either way, it’s time for the FIRST ANNUAL, WHICH I BELIEVE IS ACTUALLY THE INAUGURAL…

LIVING ONE-HANDED HOLIDAY GIFT GUIDE!

Here’s a bunch of cool stuff I found that’s super sweet for one-handers, but is ALSO uber-convenient for those of the standard two-handed limb configuration!

First of all, I’d be a terrible author if I didn’t suggest Different Is Awesome!, a book for all children that teaches acceptance and celebration of differences! The story is engaging and the illustrations are bright and fun! A perfect present for that little one on your list! (If you want a signed copy, email me directly! ryan@livingonehanded.com)

000_different-is-awesome-cover-GREEN (1)

Continue Reading…

Subscribe to Podcasting One-Handed on iTunes here

A while back I got a text from my friend Erin.

Erin is an elementary school teacher and she had just read a book called Harry and Willy and Carrothead with one of her students.  She thought I would like it.

She was right.

51SleS4xljL

When I saw her text, I was like, “How have I not heard of this book?!”  Well, author and illustrator Judith Caseley wrote Harry and Willy and Carrothead back in 1991, so I was fourteen at the time.  Mystery solved.  Briefly, the book is about a boy, Harry, who was born with one hand, just like me.  His friend, Oscar, has red hair and Willy decides to tease him about it.  The cover kind of gives away how things turn out.  I love it.  In fact, I read it again to my kids and some of my nephews at Thanksgiving and they all sat in rapt attention, smiles on their faces.

Shortly after I got the book for myself, I “pulled a Ryan” and emailed Judith to tell her how much I loved it.  She replied soon after and we have since become friends, which is incredible.  A couple months ago she graciously agreed to be interviewed and I’ve finally finished editing our conversation!

This podcast is a little different than the others I’ve done in that, it’s more of an actual conversation.  Much of it was, frankly, only interesting to me, so I’ve edited it down to the parts I think will interest you!  She tells about the inspiration for Harry’s story, her experience with people with disabilities and some about writing good stories.  She’s awesome and I think you’ll love it!

 

With the holidays coming, Harry and Willy and Carrothead is a PERFECT gift for kids or your kids’ school or your public library…the list goes on and on.  🙂

UPDATE 4/17/14: Holy smokes! Are you read for ROUND TWO?! Sarah has graciously agreed to give away ANOTHER 20-PIECE SET (gloss finish) of KNORK flatware to one lucky person! That’s a $90 value! Participate via the Rafflecopter widget below and I’ll announce the winner next week! Share, share, share! 🙂

We are seriously still loving ours some six months later!

A couple weeks ago I received an email from Sarah at KNORK.

She was like, “Hey, we have these utensils that are made to work super rad with one hand and we’d like to send you some so you can tell us what you think.  And we’d love for you to do a review on your website. Especially if you also think they’re rad.”

I probably shouldn’t have used quotation marks there because that isn’t really what she said at all, but the gist is the same.  And the cool thing is… I DO think they’re rad.

knork flatware

Look at that KNORK fork! It’s a thing of beauty, eh?

Watch this video I made to see me un-box my set and then use them. It’s super dorky, but my reaction is genuine.

Basically, I’m a huge fan of the KNORK flatware. They’re solid, beautiful and incredibly efficient. We’ve been using them throughout the week and we all (my wife and kids included) love them. My wife and kids have all of their hands, too, so it’s not like being one-handed is a pre-requisite for enjoying their awesomeness. I used mine tonight to eat some ramen AND a bowl of Golden Grahams. WORKED PERFECTLY. Seriously, though, we had a pork roast last night and my KNORK fork cut through it like BUTTER.

So, go to KNORK.net and check ’em out. Then see if your local stores (like Bed, Bath and Beyond) have them and git some!

a Rafflecopter giveaway

P.S. Obviously, I got mine for free, but I’d tell you if I hated them. Seriously.  And I don’t get anything if you buy them, so I’m not just hocking you some junk to make some paper.  I really do like them and think you will, too.

Today I’m excited to host a guest post by my friend Elizabeth Stinson.  Elizabeth is an amazing young woman, currently doing her grad work in microbiology at the University of Pittsburgh.

“No, I can do it ALL. BY. MY. SELF! I do not need your help.” How many times have you thought this or heard your child say it, whether you/they have a limb difference or not? I think it is completely normal to want to be self-reliant and not ask for help. When I was growing up, though, it went beyond that for me. I felt I needed to prove something not only to myself, but to the world.

First, let me introduce myself. My name is Elizabeth and I am twenty-two years old.

Me!

Me!

I was born with a left radial clubbed hand (my wrist was bent so my hand looked like an ‘L’) and I do not have a thumb on my left hand. I also have an incomplete wrist, elbow, shoulder, and clavicle. I had seven surgeries between the ages of ten and fourteen to straighten my wrist and lengthen my forearm to increase function through the use of an external fixator.

Continue Reading…

In this episode:

  • Welcome and recap of the Helping Hands Midwest weekend
  • Interview with Tony Memmel (find him on Twitter, Facebook and at TonyMemmel.com)
  • Kwestions with Kristy – What do you remember about starting school?  What advice do you have for parents whose kids are starting soon?
  • Interview with my mom – My mom tells us about when started school – what it was like for her and for me
Lesleigh, Julie, Tony and Me (Photo by Keith Azzopardi)

Lesleigh, Julie, Tony and Me (Photo by Keith Azzopardi)

I’d love if you subscribed on iTunes and left a comment!

Continue Reading…