Archives For Ryan

**Offer extended TODAY ONLY (November 28th) in honor of Small Business Saturday!**

The holidays are approaching quickly, which means one thing: YOU GOTTA START BUYING GIFTS NOW!

That, or you’ve been reading posts that make you feel bad about the commercialization of the holidays and have vowed to celebrate the true meaning of the holidays.

But still…presents.

Seriously, though, one popular guideline for gift-requesting-and-giving that I really like is this poem:

Something you want, something you need, something to wear, something to read.

Simple, yet robust.

And to help you with the “something to read” portion, I would like to offer you this LIMITED TIME OFFER! I’m told when you capitalize things and use exclamation points it makes it look super important.

From now until November 19th – ONE WEEK ONLY! – you can get an AUTOGRAPHED, PERSONALIZED (“For Jimmy! You’re awesome!”) copy of Different Is Awesome! AND a STICKER and BOOKMARK (which are not currently available anywhere else) for only $25! Shipping included (US only)!

Book, Sticker and Bookmark!

Book, Sticker and Bookmark!

I’ll be taking orders until the 19th, so if you’re interested shoot me an email at ryan@livingonehanded.com with the following information:

Your name and address, how you want your book(s) personalized and whether you’d rather send a check or be invoiced via PayPal.

BUT THAT’S NOT ALL!

Act now by entering the Rafflecopter thingy below and you also have a chance to win one package for FREE! The more you share it, the better your chances of winning, which is basically all kinds of awesome.

a Rafflecopter giveaway

So, on a serious note, I’ve been overwhelmed by the positive response to the book over the last several months and really hope this is a special way to keep the message spreading. If you’re not into the holiday package thing, you can totally still get the book through all the regular channels here.

Thanks for being so awesome!

Ryan

Eric Edholm’s recent blurb about Jason Pierre-Paul’s new football glove is just another example of why we need to keep having conversations about how words have power.

If you’re not a sports fan, Pierre-Paul is a defensive player for the New York Giants and over the summer he had an unfortunate accident with some fireworks resulting in the loss of his right index finger and damage to his thumb and the other fingers. Nobody was sure if he would recover well enough to even be able to play again, but the Giants recently cleared him to play and he will be wearing this modified glove on Sunday.

https://twitter.com/ESPNNFL/status/662357778502172672/photo/1?ref_src=twsrc%5Etfw

Now, let me be clear: I’m not personally offended by Edholm’s take. I can appreciate his use of the word “handiwork” and imagine he rightly smirked while writing it. He can say whatever he wants (and clearly has), but he’s also subject to critique and in this case, I think it’s warranted.

Edholm tells us how “creepy-looking” the glove is and that he’d buy one “for it’s sheer weirdness.” He says he can’t stop staring at it. “And if he needs this strange-looking glove to thrive, well then so be it,” he says, dismissively. He also refers to another player who was missing digits and wore a glove “on his good hand.”

Edholm clearly has no qualms with what he wrote, basically calling anybody who has a problem with it an idiot.

Screen Shot 2015-11-07 at 7.10.44 PM

And this is exactly the problem, as I see it.

I know countless people, including many friends, who use modified equipment because of how their body is shaped. Many of them were born that way. Others lost parts of their bodies in accidents or war. Do they look different? Than most people, absolutely. And as we all know, Different Is Awesome! So, would I ever describe them or the tools they use in their lives as creepy or strange-looking? Would I make jokes at their expense? Nope and nope.

The fact that Edholm finds this acceptable and is himself annoyed and offended that anyone would take umbrage with the words he used is precisely why we need to continue having conversations about how to treat others that are different than us with respect. It’s not about being “offended by everything.”. It’s about teaching people that the way we talk about others can and should be done respectfully.

And yes, Pierre-Paul did it to himself. But really, do you think he was trying to blow his fingers off? It was an accident. And as stupid as anyone might think it was for a millionaire athlete to be setting off fireworks, that doesn’t mean he deserves ridicule and disrespect. It doesn’t mean he automatically becomes fair game to be the butt of bad jokes. “But Ryan, he’s a strong, grown man. A football player, no less! He can take it,” you might be saying. I don’t think it’s our place to make that judgement. In fact, I have to think he felt more embarrassment and fear of this new life he has now to lead than any of us may ever have to face.

My point here is not to shame Edholm. It’s to try and illuminate the truth that our word choices matter, even if we think they aren’t a big deal. I’ve heard from enough parents of limb-different kids to know that other kids at school or on the playground use these exact words – creepy, weird, strange – to describe their sons and daughters.

As adults, we need to set a better example.

What are your thoughts? Do you think we need to think more carefully about the words we use? Or do you think we need to have thicker skin?

A year ago today I saw my dad alive for the last time.

I knew this day was coming and I’ve done my best to prepare, but I’m honestly still not sure how the day’s going to to go.

As with any loss, but especially suicide, there are things I wish I could have done differently a year ago. Like, I wish I would have visited again before he took his life a couple weeks later. Things I wish I would have noticed. Like how he chose to stay behind and make the pizzas instead of going door-to-door with the kids. But, I fully realize that wishing I could have done things differently doesn’t change how they actually went and it doesn’t help. I also know it’s natural to feel these things, though.

The truth is, everything that happened that Halloween day in 2014 was totally normal. We went over to Papa and Donna’s, the kids went door-to-door with Julie and Donna, Dad and I stayed back to make pizzas and handout candy, we took pictures and then we went home. Pretty much exactly the same as we’d done the past ten years.

Last Halloween Picture With Papa

Last Halloween Picture With Papa

For a while I was actually kind of mad about the fact that the last time my dad saw my kids, Claire was dressed like a hotdog and Sam was wearing a friggin’ green morph suit. Over time, though, I’ve come to think it’s pretty funny. That’s who they are. And I remember my dad thinking it was so funny. I also remember handing out candy while he was in the dining room and knowing the mom of the very first kid that came to the door. “You knew her??” he asked me. “Yeah, we used to work together,” I answered. “Of course you did,” he said with a chuckle.

It was a running joke with my dad and I, ever since I was little. Wherever we went, I knew somebody or they knew me. He’d give me grief about it and shake his head, but the irony is that he was the same way! My dad knew everybody and everybody knew him. So, really, it was an inherited trait. One I’m grateful for.

So, today we’re going to celebrate Halloween like we always have. The kids will dress up and we’ll go over to Donna’s and trick-or-treat in their neighborhood and eat pumpkin-shaped pizza and handout candy to other kids. It might be hard. We might cry. But we can also talk about the happy memories we have about all the Halloweens we got to spend with Papa, too.

And there will be plenty of candy, I’m sure.

We love you, dad, and we miss you so much.

And I’ll think of you smiling every time I run into somebody I know today.

Happy Halloween.

Papa and a tiny little Claire dressed like a fairy.

Papa and a tiny little Claire dressed like a fairy.

Sam and Anna with Papa and the pumpkin pizza in 2008.

Sam and Anna with Papa and the pumpkin pizza in 2008.

I love this shot, walking the neighborhood, talking with dad.

I love this shot, walking the neighborhood, talking with dad.

Sam and Papa with the pumpkin pizza in 2009.

Sam and Papa with the pumpkin pizza in 2009.

First of all, let’s just get this out of the way:

Yes, I got a tattoo on my one wrist.

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I’m not gonna lie, I was a little nervous about it. I mean, you don’t plan on things going wrong, but…what if? It crossed my mind. Thankfully my son lightened the mood before I left the house to get it by asking very innocently, “Which wrist are you gonna get it on, dad? (pause) Oh, wait…nevermind.” His sheepish grin afterward made me laugh and relax.

My friend Alex tattooed me at Steve’s here in Madison and he did an amazing job. It was my first, so it was cool to have a friend do it; someone who understood the significance of it. He told me he’d take it easy on me and for the most part the experience went off without a hitch. I determined beforehand not to look until he was finished, but a little ways in I couldn’t resist a peek. It was my only mistake. I looked over, hopeful it was nearing completion, and it…well…wasn’t.

I didn’t look again until he was finished.

My daughter asked if I cried and I told her, “Not from my eyes.” I did sweat. A lot. But I made it through without any breaks and with only two deep breaths to refocus. If you’ve never gotten a tattoo, the sensation is hard to explain. It’s painful, for sure, but there’s something that feels almost sacred when it’s happening. Well, that and like a cat clawing at a sunburn. With broken, jagged claws. It’s beautiful.

So, why did I get a tattoo and why did I get this tattoo?

This goes back a ways. There were many times in my life that I wanted something that I could have gotten and just didn’t. I always wanted some Chuck Taylors in elementary school and just never did. I wanted to get my ear pierced for a long time and never did. I’ve wanted a tattoo for a long time…so this time, I did.

And this tattoo is for me. Even though I’m sure it will connect with many, many people and it will start amazing and intense conversations, ultimately, I put it in a place on my body where I can hold it up and look at it and read it myself. For me.

In November of 2014 I lost my dad to suicide. It’s still hard to fathom. So, my tattoo incorporates two very meaningful elements for me. If you’ve not heard of Project Semicolon, the idea behind it is that a semicolon represents the opportunity the author had to end the sentence with a period, but they chose to continue on instead. The idea is that we all have that choice with the story of our lives. Will we end it or will we continue on? So, the semicolon is to honor my dad by bringing awareness to the tragedy of suicide and to encourage those also struggling. A kind of we-re-all-in-this-together thing.

The other element is the phrase “Be Not Afraid.” Not a specific Bible verse, but the concept is pervasive throughout scripture, for sure. I struggle with fear and anxiety quite a bit. I’ve gotten better than I used to be, thanks to an amazing therapist and fantastic friends, but it’s still something that gets in my way. It can be paralyzing. And I don’t like it.

So, the theory is, when I’m feeling afraid, hopeless, down…I can look at my wrist and be encouraged.

Be not afraid, Ryan. Keep going.

Here’s what’s kind of funny about this. My dad grew-up the son of a WWII hero turned small town cop. I remember him telling me in no uncertain terms that if I grew my hair out or got an earring…it would be a problem. So, I didn’t. I didn’t resent him for it or anything and we had our moments, like when I dyed my hair purple, but it was never that big of a deal. Flash forward a good number of years and I’m visiting my dad as an adult when I notice something on his shoulder. It was a big ol’ cross! “Dad, when did you get a tattoo??” I asked incredulously. “Had a dream about it,” he told me. “You had a dream about it?” I said. “Yep. Had a dream about it, so I went in and picked it out and had ’em put it on me,” he said.

And that’s really all I remember about how my dad’s tattoo came to be.

I have some more ideas for myself and I’m looking forward to having them done.

One incorporates a cross on my shoulder.

Do you have a tattoo? Or tattoos? What was your experience like? Why did you get yours and what do they mean?

The other day my son and I were getting groceries and as we walked toward the orange juice we saw a guy about my age who had an arm just like mine. Once we passed him, we looked at each other and smiled and Sam said to me, “Dad, I know what you were thinking.” “Oh, yeah?” I said.

“Yeah,” he said and then dramatically pronounced, “I’M NOT THE ONLY ONE!!!” while holding his fist in the air.

We laughed super hard because that’s not what I was thinking at all, of course, but it did get me thinking about how I really do react when I see someone else with one hand. This is basically how it goes:

  1. Nice! One hand.
  2. Was that head-nod too obnoxious?
  3. Should I go say hello?
  4. Should I give him a Living One-Handed card?
  5. Would that be weird?
  6. Crap, now he’s past me and I missed my opportunity.
  7. Should I go after him?
  8. Will that scare him?
  9. Am I about to get arrested?
  10. Can I survive in jail?

As you can see, it’s a rather stressful situation!

The truth is, I never used to notice people with one hand. I’m convinced it was because my own one-handedness was never in the forefront of my mind. But, once I started the website, I suddenly noticed all the time! I imagine it’s like when you buy a car, say a Toyota Camry, and then all you see are Toyota Camrys on the road.

Typically I don’t approach people with one hand, just as I don’t approach people just because they have brown hair or blue eyes. I’m naturally an introvert, too, so approaching strangers isn’t my strong suit anyway. That said, if the opportunity presents itself and it doesn’t seem super awkward, I might say hello and tell them about the website. And now with Different Is Awesome! being out, I can bring that up pretty easily if I happen to be around the parents of a child with one hand, or any physical difference, really.

My kids always run up to tell me whenever they see someone with one hand and it’s adorable. I love that they are aware and excited about what I do and that its removed any fear they have about someone with one hand. When we were in Ohio this year for the Helping Hands Midwest picnic, the man at the front desk of our hotel had a limb-difference and do you know how I knew that? Each of my kids went to the lobby to get breakfast at different times and each of them returned to excitedly tell me about him. As we checked out I mentioned it to him and he thought it was hilarious and we had a nice short discussion about the picnic, which he hadn’t heard of.

Ultimately, I notice people with one hand more now than I did before, but for the most part I don’t do anything but that…notice it.

And sometimes yell, “I’M NOT THE ONLY ONE!!!”

If you’re an adult with a limb-difference and you see someone else like you, how do you react? If you’re a parent and you see another child who looks like yours, do you seek out the parents? Share your experience in the comments!

Yesterday Twitter blew-up over the death of former football star Tyler Sash.

I wasn’t familiar with him, but saw that he was a Big 10 kid (Iowa), so I read more. He won a Super Bowl with the Giants his rookie year in the NFL, played a few more years and has been out of the league since then. He seemed to be friends with everyone. And nobody could believe he was dead. Then I started seeing things like, “Depression is no joke.”

And that’s when I thought to myself, “Is this what they call a trigger?”

It sounds like it might have been suicide that took Tyler, though it hasn’t yet been confirmed. If it was, though, it’s horrible.

Obviously, it made me think about my dad.

This week has been interesting for me. It’s National Suicide Prevention week. I’ve advocated in years past during this week because of my uncle’s suicide thirty years ago, but this year is different. I’m struggling to know just how to hold this all in my heart and mind this week.

On Monday, for instance, I took my son to the doctor. I was looking at him while we were checking in and was caught off-guard when I heard, “Grandpa Calvin still ok for the emergency contact?” I snapped my head toward the young man, hoping Sam wasn’t paying attention, and politely said, “Actually, if you could please remove him from the account, we’ll be ok with just me and Julie for now.” Those moments are fleeting, but nonetheless difficult to work through.

AFSP_SPW_socialgraphics_150ppi6I also saw a beautiful photo a good friend of mine post of her youngest son’s hand being held by that of her father-in-law, his grandfather. Within the heart-felt caption she quoted Proverbs saying, “A good man leaves an inheritance to his children’s children…” and my heart sank. Was my dad not a good man? Of course he was, but in that moment, my heart was broken. My kids won’t ever hold his hand again. My brothers’ kids will never hold his hand or be held by him. I absolutely hate that. Hate it.

And here’s the thing…I was never upset with my friend for posting that. It’s beautiful! And I’m so happy for them, for real. But, it triggered something in me that I had to work through. Which is hard, but ultimately good. Thankfully I have an amazing wife who let me discuss it with her and make her late for whatever she was getting ready for.

Honestly, this post seems a little self-centered to me, but I’m still sharing it because I’m sure there are tons of people who are going to read it and be like, “Dude, this is exactly how I feel!” And we shouldn’t feel bad about it. The fact is, we lost someone to suicide and it sucks and it’s absolutely normal to struggle with how to feel.

I think it’s pretty clear that I’m all for suicide prevention. Now more than ever before. That said, this year I don’t really want to be a champion for the cause. I need to be okay with the fact that I’m still grieving.

So, if you’ve lost someone to suicide…I feel you. I’m with you. And I’m so sorry. We’ll get through this.

AFSP_SPW_socialgraphics_150ppi8If you’re thinking about suicide, please please ask for help. I know it’s hard and I know you don’t or maybe can’t think about it in the moment, but please, just tell someone. It might seem like the only way out of whatever situation you’re in. It might seem like the only way to make the pain stop. But, please hear me: IT’S NOT. It’s not the only way. You’re valuable and we need you and I’ll shout that from the rooftops until the end of time. Stay with us. We’ll help.

For everyone else, count your blessings. I’m not saying that to make you feel bad, either! Seriously, be grateful if you don’t struggle with these thoughts or haven’t been affected directly by the devastation that is suicide. Keep spreading your light and life and love to those around you.

You never know who needs it.

National Suicide Prevention Lifeline – 1-800-273-8255

Yesterday I had several people connect me with this story:

https://youtu.be/7Xrpg3KTj4U

Essentially, the Wisconsin DMV refused to give Mr. Speckman a Wisconsin driver’s license without first having to take a driving test (because he doesn’t have hands), even though he’s had a valid license from the state of California for over 40 years. I’ve seen many reactions, ranging in intensity. The most common has been, “What in the world?? How could they?? That’s discriminatory!”

That was my first thought, too.

I’m conflicted, though.

On one hand, I totally get Mr. Speckman’s frustration. He’s been driving for over 40 years (accident free!) and has a valid California license. What right do they have to make him take a driving test to prove to them that he can do it safely?

Mr. Speckman driving (credit: wbay.com)

Mr. Speckman driving (credit: wbay.com)

On the other hand (if you have one), that’s pretty much their job, right? To make sure that the people they’re licensing are capable drivers.

While there’s a lot of room for improvement here (which I’ll get into), I think there needs to be some understanding, too. I don’t envy the position of the person/people at the DMV. Driving is a rather hands-on activity and if you’ve never seen a person with one hand or no hands drive before, I can understand why you’d be extra careful. Your job is to make sure (to the extent that it’s within your control) that you’re licensing drivers who can traverse the roads of your state safely. Now, we all know that having two hands doesn’t guarantee a safe driver, but the point is, if you don’t have any hands and I don’t know you personally and have never seen you drive, I can understand the hesitancy.

In fact, ever since I turned sixteen, the back of my driver’s license has looked like this:

20150827_105217-1I’m not allowed to drive a car with a manual transmission. I’m not sure we ever even spoke about it; I think they just put the limitation on there. And I’ve honestly never cared. Could I drive a stick? Absolutely. Could I challenge the restriction? I’m sure I could. Will I? Nope.

This situation actually makes me wonder what the process is for administering a driving test as people get older? If someone’s in their 80s or 90s, do they automatically have them take the test? It seems like we don’t get as upset about that or call into question discrimination in these cases, and I’m not saying we should or shouldn’t, I’m just making an observation.

At its core, the problem here is the assumption, right? I get that that’s upsetting and, in Mr. Speckman’s case, surprising. I believe we also have to remember the practical aspect of licensing and ensuring the safety of other drivers, though.

That said…

The inconsistency and subjectivity of the process must be improved. My guess is that, while it was surprising and somewhat offensive, if the DMV folks had addressed the situation consistently and respectfully, Mr. Speckman would have understood. We (people with physical differences) aren’t entitled to special treatment, nor should we expect it. We do, however, deserve and expect respect and to be treated with dignity, just like anybody else.

If Mr. Speckman had two hands (or even one) and a valid California license, would they have administered a driving test? That assumption is perhaps where the greatest challenge lies.

Ultimately, it makes me sad that my home state looks terrible in this situation. It’s embarrassing. This could be really good, though. Without even intending to, Mr. Speckman may have sparked statewide process improvement when it comes to licensing drivers with physical differences in the state of Wisconsin. The challenge, then, is to turn this ugliness into something beautiful.

And to move, as our state motto says…Forward.

What are your thoughts about the situation? Have you ever experienced something similar? How did you react?

“I was waiting for YOU to ask me!” she told me.

I had just asked Lisa if anybody had invited her to prom yet. I was not the most savvy of young men at the time.

So, I officially asked her to be my date and she said yes and we had a wonderful time at prom together.

We ended-up dating for a short time after that, but like many high school romances it eventually ended and we both moved on.

We remained friends, but lost touch after high school for the most part.

Then, ten years ago to the day, I saw Lisa’s smiling face in the obituaries. I gasped audibly. Not because it was totally unexpected, but because it was still hard to believe. And it made me really sad.

Lisa had Cystic Fibrosis, although I never understood the complexities and seriousness of the disease when we were together. The disease took her at age 26, which is close to average for expected lifespan. Again, something I didn’t know when we were together.

I remember people said I was brave for being with her because of her condition. To be honest, I was mostly just ignorant. Maybe naive is a better word. I was with her because she was cute and fun and funny. We did normal stuff. We went to the movies, we hungout at each others’ houses, we went to the park. It never crossed my mind that she would die young.

I’ve never thought about it until now, but I wonder if people thought the same thing about her being with me? How sweet of her to be with that boy with one hand! As far as I remember, neither of us ever talked about our “conditions.” It would have been like having late night conversations about the color of our hair or our height. Which she would have hated because she was so short.

The facts that she had CF and I had one hand were far down the list of things we were concerned about.

And I love that.

We miss you, Lisa! We’re all grateful for the time we had with you and are thankful for the smiles and laughter you brought. Your strength and determination inspired everyone you knew.

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A few weeks ago I was on the news to talk about my new kids’ book, Different Is Awesome!

I had a great time with the hosts and felt like it went really well. Later in the day they put the segment up online and the title of it gave me pause:

Author Talks About Living With Disability

Here’s the thing: I don’t have a disability.

Now, if you know me at all, you know this isn’t something I get angry or belligerent about, but this time it did cause me to go, “What?” Mostly because I thought it could have been presented in a number of different, more positive ways. “Author Talks About New Kids Book” or “Author Discusses New Kids Book Encouraging Children To Embrace Differences” or “Man With One Hand Won’t Stop Making Animated Gestures To Emphasize Points”

Since I was a bit surprised by my reaction this time, I looked-up the word “disability” in the dictionary:

1. lack of adequate power, strength, or physical or mental ability; incapacity. Nope.

2. a physical or mental handicap, especially one that prevents a person from living a full, normal life or from holding a gainful job. Nope.

3. anything that disables or puts one at a disadvantage. Ok, by that definition we’re all disabled.

I love words and I respect the power they hold. I also know that this community and the greater community of people affected by physical and/or mental differences thinks a lot about how we are labeled. And that’s totally appropriate. The conversation is as important as ever and we should all be involved to some degree.

In fact, someone asked me how I prefer to be referred to the other day and after thinking for a beat, I told him I wasn’t sure.

It’s something I’m still wrestling with myself.

I know that disabled isn’t it, though. Or handicapped.

Differently-abled? Diff-abled? Adequately-abled? Mostly-able-bodied? Able-bodied-ish?

The fact is, I’d rather my difference be placed somewhere far down the list of words used to describe me.

I’d guess that the vast majority of you feel the same way.

That said…

What terminology do you prefer to use when describing your (or your child’s) difference?

left handers day